Thursday, July 14, 2011

My daughter is 2months old but was born 6 weeks premature.?

She is on an apnea monitor to monitor her heart rate because when she was born she stopped breathing for a few seconds while eating or sleeping. She is not 2 months old and the past month has been great & we have had no alarms until 4 days ago..4 days ago I took her to the emergency room because the patches that go against her skin for the monitor were eating at her skin..They ended up sending her home..Once we arrived home she started having apnea alarms for not breathing..We have dealt with that before when she first came home so we just watched her closely. Around midnight that night my husband and I layed down to go to bed, I was just about to fall asleep when my daughters apnea alarm went off for her not breathing. My husband and I rushed over to her crib and she was pale. She finally started breathing again after about 30 seconds but she was unresponsive..We tried saying her name, rubbing her feet, blowing lightly in her face, holding her...&& nothing happened..she would not move at all..My father rushed in the room and as soon as he saw her he yelled for my brother in law to call 911. Once the paramedic arrived he took my daughter from me and pinched her foot..that was the first time she moved but she would not wake up or make a sound. On the way to the hospital I was with my daughter in the ambulance and the paramedic gave her a shot in her foot to check her sugar and when he did she did not even cry (thats not normal for her..she usually screams her head off when getting a shot) all she did was make a sad face. The paramedic was then worried because he said thats not normal at all, which I already knew. Once we arrived to the hospital she because responsive..She woke up, cried, all that stuff. They did some blood work && some chest and abdominal xrays..The blood work showed that her potassium was low && the xrays came back good. My husband and I made the decision to have her transferred to Ohio to their childrens hospital. Once arriving there, they ran some tests such as a urine test, blood test, EEG, Brain Ultra Sound, and an MRI. The blood test, urine test, eeg & mri all came back normal, but they said that the ultra sound showed a spot of blood on her brain...they said she has had it since birth and that it has not changed at all (my husband and I were never told about this blood on the brain at birth while she was in the nicu). 3 different doctors were telling us how the blood on the brain was the exact same size as it was when she was born and that they were worried because it had not shrunk at all. They said she was a grade 1 of 4 which is the best to have. They said blood on the brain is normal for preemies and that it could go away, it could get larger, it could get smaller ... it could do anything... The next day the doctor tells us that the radiologist read the report wrong and that she does not have blood on the brain. I am happy to hear she does not have blood on the brain but doesn't that seem fishy that they told me everything about the size of the blood and everything and then tells me they read it wrong? They send my daughter home because they found nothing wrong and she is back to being herself. My husband and I are at a dead end on what to do. I want a second opinion. They told us what happened to her could or could not happen again, they dont know...This is my 2 month old baby were talking about..I am a new mother...Has ANYONE ever heard of anything like this?

No comments:

Post a Comment